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The Sovereignty Network Will Help Patients Make Money From Your HealthData

Being patient has always meant being at the bottom of a trickle-down pyramid in healthcare. Delaying access to information, our test results, our data, and making money for what our healthcare data is worth – this is something the healthcare industry does without our permission or dues. We’re right out of it.

But what if we made clinical data tools available on your device, so you could create the most valuable set of health care data that exists about you anywhere? What if you owned that particular data set as your personal asset? Well, we get that researchers want access to it – and pay you for that access.

Not only that, how valuable would it be to have the most complete and accurate health care data set available about you under your ownership and control? How can you expect a doctor or yourself to come to the best conclusions with incomplete information about your health?!? Frustration, confusion, anxiety and poor health are often the result.

How the Sovereignty Network empowers you to build your own health care data set

Creating the most valuable data set about you, for you, is what we at The Sovereign Network have done. We elevate you as a data owner as a patient. There are 4 easy steps to becoming a data owner and getting your data’s worth – and you have a complete and accurate set of health care data available for your peace of mind.

  1. We’ve coded clinically simple to answer FHIR and SNOMED CT questionnaires that cover the entire spectrum of your health. We call this “DCPLEG”. By filling out questionnaires in your personally owned and secured profile that represents your demographic, clinical, psychosocial, lifestyle, environmental and genomic data, you paint a full 360-degree view of your health.
  • Where clinical data sets are also available, such as through the newly implemented Patient API rule in the US, you can also add your clinical data from your healthcare providers. The spread of the FHIR data interoperability standard around the world makes it increasingly possible to accomplish this.
  • Data researchers can sit at their desktops and specify the exact criteria they’re looking for (anonymous, of course) using the same diagnostic codes you and others have already filled out in your health profile above. Such as age, gender, condition(s), medication(s), procedures, in-depth demographic information, environment, lifestyle, psychosocial markers, etc. Even individual base pairs within an entire genome can be specified through partners. Through the Sovereignty Network they can make you an offer that you cannot refuse, as it were. If you agree to the offer, only then can they contact you with their survey which they invite you to complete.
  • We have invented a new class of work which we call “data coach” which acts like synaptic fluid between the joints but here works as the data owner between the data researcher and you. The Data Coach is a verified health care professional / health care data specialist who verifies the specific criteria required by the data researcher on your behalf. If a researcher is willing to pay you $100 to fill out a 20-minute survey because you meet their desired criteria, you’ll probably want to pay a fraction of the time to a qualified data coach to verify the criteria. are ready to (And once verified, the criteria do not need to be verified for another data researcher).

Turning Your Data Set into Licensable Income – or Donating It to Support You

Because you and only you own the copy of your health care data that you created – your record, or specific portions of it, is now licensable.

Perhaps more licensure than we might imagine today, because until now there has not been much prospective health research or real world evidence simply because it is considered too difficult, time-consuming, and costly to perform direct research. Organizations are hired to hire. Research. It is really exciting to consider it for you personally but also for the world of research.

You can also choose to donate portions of your data set to causes you support, such as cancer research, rare disease or more general population health research. Because this is your data set, it is entirely up to you how and for what you use it.

How researchers benefit

Healthcare researchers around the world, from institutions to pharma to government agencies and academia, are all looking for better insights and access to relevant, structured data. The Sovereignty Network can help in at least three ways…

1) send out Field Surveys and Questionnaires For the right kind of person with the exact research criteria they are looking for.

2) The research community has an undertaking of perennial issues correlation research Because it is difficult and time consuming to associate a group with many variables. Now any researcher can do it from their desktop. Even without a complex medical record, members can themselves receive offers to be part of correlational research. it includes people before this They become ill with a chronic condition due to lifestyle or environmental factors.

3) Similarly, cause and effect The study is very difficult and costly to execute. Pharma companies, policy makers, public health, academia, etc. would be very well served by the TSN platform by creating layers of clusters to more easily test the causality of variables for health outcomes. Typically, this requires a large cohort size and a long follow-up period (years to decades). Think of the Framingham Heart Study or the US Veterans Research Studies.

How Sovereignty Networks Are Paid

How do we get paid? We earn a 20% transaction fee on the value we help generate for you as the data owner. You keep 80%. We think it’s fair, aligned and scalable. It is also transparent. Your data is not sold or marketed; No ads are sold. Our success is directly related to your success. We like that.

However, as the network grows we aim to transition to being a Member owned and governed organization, A decentralized global network. At that time the members themselves own the sovereignty network, proportionate to the value contributed by each member. In this way, the entire data set can persist indefinitely, governed by its own charter, without being contaminated by large amounts of money in only a few hands. Sovereignty networks need to be owned and controlled globally. If you’ll excuse the reference to Abraham Lincoln, it has to be “of the people, by the people, for the people.”

Ending It With Kickstarter

Its goal to be a global community and for everyone to be able to access, create and own their health care data sets, let me announce this especially here on the Health Care Blog to all readers and friends of readers. Glad we’re all rolling this experience into a global Kickstarter campaign starting today.

Why the Kickstarter Campaign? It only works with people using it. Establish a market so that supply and demand are adequately matched for quality transactions. (otherwise known as liquidity and transparency). 70% of the money raised goes back to each person pledged through the Sovereign Network and provides you with your personal data coach to advise and assist you in creating an accurate and complete data set, no matter where you are. be anywhere. The remaining 30% goes to making sure we provide the best possible experience for you as the market starts.

A marketplace designed for patients and those serving them.

The platform is already working. We have already engaged top patient advocates, data standards experts and researchers to test the system. Your support is needed to turn this into a global movement now, and a great first experience for early founding members. Everyone who supports a Kickstarter campaign becomes a founding member.

A CODA for those interested in data ownership

the perennial custodial data barrier in health care (ie, they know it’s not Actually their data – that’s just 9/10 of the law) means you are the only person who can legally and ethically allow all the different components that a curated, accurate, identifiable and valuable collection of health data make sets. About you will be shared without any weight,

But not everyone in healthcare agrees that “data ownership” by patients is the way forward. We beg to differ. Healthcare providers can still “own” their own set of data about you, but you need to keep a copy of yours as well. This becomes clear when you know very little about this: how privacy rights were fundamentally divorced from property rights when privacy became its own separate branch of law 130 years ago. I wrote about it recently https://sovereignty.network/blog/enjoining-privacy-rights-and-property-rights-can-assist-patient-data-rights

As I write in the article, a highly influential law paper in 1890 called “The Right to Privacy” by Warren and Brandeis deliberately proposed the right to life as a universal right under laws, not the traditional branch of under. Laws relating to privacy, of property rights.

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